> finally got double confirmation that I will receive my work laptop tomorrow so that I will be able to work from home when needed. A little bribery never hurt anyone... Well, let's call it a motivational treat ;)
> started printing docs to track and understand all the different terms and words used to see if there is wiggle room in tests and results for different diagnoses... or prognosis if were being totally honest
> received the first call from our case worker today who is very kind and Irish and sweet and gave us some very very very helpful and comforting and supportive information and resources.
> started calling foundation-suggested docs to get more information and guidance. Finally landed a conversation with a real person and was directed to the number one expert (left a voice mail for that person...)!
> got an appointment with a new dr for December 5th. Sinterklaas. I hope I have time to make it to the little Dutch girl for treats to share with our new family that day!!